IVIG

Waiting, Anticipating, Shaking, Afraid! I don't want to do this infusion today! Horrified, Terrified, Really, Scared! I'm still in pain. But I was prepared! Unfair, Typical, Would you believe it?! I took all my medicine, but still feel like shit! Tired, Fatigued, Damn right exhausted! Feeling all sorts of, nauseated! Can't wait, Taxi! Take me... Continue Reading →

What’s the point?

My life saving medicine is trying to kill me. Doesn't make sense right? But this I believe! Intravenous, infusion, to help my immunity. I'm trying to combat my CVID! A lay on the chair, needle in arm. Take some deep breaths, try to stay calm. My body perspiring, I'm a little alarmed. Why is this... Continue Reading →

When you try.

It's happened again, I tried to be normal. Every time I move, I nearly fall. My legs are stiff, my bones are broken, the pain in my body had risen and woken. Stuck in one place for hours and hours, unable to even get washed in the shower. The more I try the harder my... Continue Reading →

Loser

I don't want to be alone forever, I really don't! But when I try, everything dictates that I'll be forever alone. For a couple of weeks my energy is up. I'm well and happy, I've got some luck. Then low and behold, in it comes creeping. Sickness and terror and that panicky feeling. So I... Continue Reading →

Still Rough

The CVID has been in full swing the past few weeks. It only started with a sore throat, but by gosh I'm weak. It went on to flu and now an infection. My chest is collapsing, please give me some medicine. The next stage pneumonia, bronchitis, sepsis? This isn't fair, why should I except this?... Continue Reading →

Fingers Crossed

I feel too rough to fake it today. I am at zero enegry, even to put on my mask. My body is shaking and my heart palputating and I really can't be arsed. My neck and my limbs feel bruised and burnt, my mouth is just on fire. I cough and feel dizzy as soon... Continue Reading →

CVID

I guess it wasn't supposed to be? No one understands CVID. I get sick a lot more than you. 10 times a year I'll catch the flu. Just a few months past pneumonia grabbed me. All because of CVID. Oh you ask what does it mean? Common Variable Immune Deficiency. It means I get sick... Continue Reading →

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