CVID

I guess it wasn’t supposed to be? No one understands CVID. I get sick a lot more than you. 10 times a year I’ll catch the flu.

Just a few months past pneumonia grabbed me. All because of CVID. Oh you ask what does it mean? Common Variable Immune Deficiency.

It means I get sick a lot. So with the cancer and anxiety plot. I got more or my mind each day. Not exactly a roll around in the hay.

But don’t worry that’s ok. You don’t need to give a shit today. I’ll just stay sick and for ever alone. Stuck, hoping by my telephone!

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12 thoughts on “CVID

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  1. Hi from Porirua, New Zealand. Sometimes I would swap all of the things I have been through for some sort of illness. I don’t really get sick, which I am grateful for, but I wish I could just have a break from everything sometimes. If you want to talk feel free to email me through my silly contacts tab on my site. Have a nice day (I hope). ❤

    Liked by 2 people

    1. I don’t know what it is you’re going through but you should never wish for something you don’t have. I too have been through tough times that aren’t to do with my health, but this is me right now.
      Thank you for reading and I hope that this finds you well? Thank you for your kind invitation to talk, that is offered to you from me too.

      Liked by 1 person

      1. I am well thank you. My gmail address is the one I use the most if you ever want to email or whatever. It’s late on Friday night here.

        Liked by 1 person

  2. Hi from the UK! I can sympathise there. I finished chemo only to be diagnosed with hypogammaglobulinemia, also an immune deficiency. Which was kinda a relief after the long list of health issues. If you ever want to chat to someone who relates feel free 🙂

    Liked by 1 person

      1. Sorry I didn’t realise it had to be authorised and wrote it out again 😂 is there a way on inboxing on here? I only joined yesterday and have no idea how to use this app lol

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  3. Hi, I have spinal cord damage and physically every day is different. When I’m semi mobile and I try to live life people think ‘she looks fine to me’ but it’s what they don’t see. I feel for you, you have something that determines how you live your life and not everyone gets that. It’s probably hard for you to plan ahead because you never know whether you’ll be well or ill. You probably cancel a lot and friends (not the real ones) think you’ve let them down. I won’t say any more but I truly get your situation…my only advice is live life while well, don’t think about the doubters, just go for it, dance if you can, in Malcom in the Middle’s wise words ‘you’re not the boss of me’. Sod doubters. LIVE!

    Liked by 1 person

    1. Thank you Gertrude. I’m sorry you too have something that does this to you. This made me teary, but in a great way. Whilst I wish you to be as well as humanly possible, it’s so refreshing that someone gets it! I wish you all the health and happiness in the world and I hope you too can dance your way and enjoy life! Thank you for commenting, I really appreciate it. 🙂

      Liked by 1 person

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